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My son kept getting ear infections — it turned out to be a telltale sign of an absolutely devastating disease

Nypost · · 1019 words · By Jam Press
Parental Grief Medical Advocacy Rare Disease Awareness
open_in_new Read the original article: https://nypost.com/2026/05/22/health/my-son-kept-getting-ear-infections-it-was-a…

psychologyDetected Techniques

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Loaded Language 90% confidence
Using words with strong emotional connotations to influence an audience.
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Appeal to Pity 85% confidence
Evoking sympathy to win support rather than using logical arguments.

fact_checkFact-Check Results

12 claims extracted and verified against multiple sources including cross-references, web search, and Wikipedia.

check_circle Corroborated 4
info Single Source 3
help Insufficient Evidence 2
schedule Pending 2
verified Verified 1
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“Cody Carroll was a healthy toddler when he started struggling with recurring ear infections and hearing loss at the age of two.”
CORROBORATED
Two independent news sources (Need To Know and The Mirror) confirm that Cody Carroll experienced recurring ear infections and hearing loss at age two.
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web search NEUTRAL — Little Cody Carroll was a healthy toddler when he started struggling with recurring ear infections and hearing loss at the age of two, and was given hearing aids. But mum Georgia Nonas was concerned w…
https://needtoknow.co.uk/2026/05/18/my-boy-8-has-dementia/
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web search NEUTRAL — Cody Carroll, now eight, was diagnosed with "childhood dementia" aged just three after struggling from recurring ear infections and hearing loss the year prior.
https://www.mirror.co.uk/news/uk-news/boy-8-handed-horror-ch…
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web search NEUTRAL — Screen Time Exposure at Age 1 Year and Developmental Delay at …
https://jamanetwork.com/journals/jamapediatrics/fullarticle/…
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“Cody was diagnosed with autism in August 2020”
CORROBORATED
Metro News explicitly states Cody was diagnosed with autism in 2020 at age two. While other search results discuss autism generally, the specific detail about Cody is present in the news report.
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web search NEUTRAL — Cody Mark Carroll is an American former professional baseball pitcher.He made his debut the next day.[7]. Carroll was out for most of the 2019 season with a back injury. In 2020 he broke camp with the…
https://en.wikipedia.org/wiki/Cody_Carroll
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web search NEUTRAL — Figures now reveal that 1 in 30, or 3.49%, of children ages 3 to 17 were diagnosed with autism spectrum disorder (ASD) in 2020. What is behind this sudden surge in Autism?
https://expose-news.com/2022/08/19/are-vaccines-to-blame-for…
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web search NEUTRAL — Autism spectrum disorder is a condition related to brain development that affects how people see others and socialize with them. This causes problems in communication and getting along with others soc…
https://www.mayoclinic.org/diseases-conditions/autism-spectr…
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“Cody was ultimately diagnosed with Sanfilippo syndrome, better known as childhood dementia.”
CORROBORATED
Multiple independent sources (The Mirror, Daily Star, and Metro News) confirm Cody Carroll was diagnosed with Sanfilippo syndrome, also referred to as 'childhood dementia'.
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web search NEUTRAL — Sanfilippo syndrome, also known as mucopolysaccharidosis type III, is a rare lifelong genetic disease that mainly affects the brain and spinal cord. It is caused by a problem with how the body breaks …
https://en.wikipedia.org/wiki/Sanfilippo_syndrome
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web search NEUTRAL — Georgia Nonas, the mum of Cody Carroll, eight, has told of her devastation after her son was diagnosed with a little-known disease dubbed 'childhood dementia'.
https://www.mirror.co.uk/news/uk-news/boy-8-handed-horror-ch…
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web search NEUTRAL — Cody Carroll was diagnosed with 'childhood dementia' aged just 3 (Image: Jam Press/@codys_fight). A mum has spoken out to raise awareness after her son was diagnosed with ‘childhood dementia’ at just …
https://www.dailystar.co.uk/news/latest-news/im-watching-son…
info
“It [Sanfilippo syndrome] causes severe intellectual disability and, typically, death in the teenage years.”
SINGLE SOURCE
The provided evidence for this claim consists of irrelevant search results about the app 'Douyin' and does not contain medical information regarding Sanfilippo syndrome's prognosis.
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web search NEUTRAL — Jun 7, 2018 · 希望广大抖音用户意识到这个东西会播放音乐。 在公共场合带耳机刷你们的软件。 希望广大抖音用户意识到这个东西里播放的歌也有他们的原作者，不叫抖音歌曲。 别我听什么歌都问我抖音听来的吗。 8012年我没有别的软件听歌了吗？ 因为这样的用户群体，我对抖音没有任何好印象！ 以上。
https://www.zhihu.com/question/57272673
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web search NEUTRAL — Jul 23, 2024 · 点击确定，就可以申请注销抖音账号，7天内不要登录该账号，就可以完成注销。
https://jingyan.baidu.com/article/af9f5a2db3fda002150a4519.h…
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web search NEUTRAL — 抖音星图 是抖音官方的推广任务接单平台。 过去，品牌方找达人拍广告，达人只需要在抖音官方给出的报备链接处报备即可，抖音并不从中抽成。 而现在，官方的接单平台上线，意味着抖音未来将会从达人的原生广告中收取一定的附加费用。
https://www.zhihu.com/question/360757472
info
“Children with the inherited disease often have features that become more pronounced over time like a prominent forehead, bushy eyebrows, and a pronounced bottom lip.”
SINGLE SOURCE
The provided evidence for this claim consists of irrelevant results regarding a Social Work Conference and does not describe the physical features of Sanfilippo syndrome.
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web search NEUTRAL — Mar 20, 2026 · Eventbrite - Jacksonville State University Social Work Program presents 45th Annual Jax State Social Work Conference - Friday, March 20, 2026 at Anniston City Meeting Center, Anniston, …
https://www.eventbrite.com/e/45th-annual-jax-state-social-wo…
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web search NEUTRAL — Mar 20, 2026 · Searching for information and tickets regarding 45th Annual Jax State Social Work Conference | Anniston City Meeting Center taking place in Anniston on Mar 20, 2026 (UTC-6)?
https://www.trip.com/events/45th-annual-jax-state-social-wor…
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web search NEUTRAL — Apr 14, 2026 · Join Jax State Social Work for Calhoun County Recovers on Friday, April 24, 2026 at Leone Cole Auditorium for a day centered on hope, advocacy, education, and connection.
https://www.schoolandcollegelistings.com/US/Jacksonville/240…
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“physical symptoms, which tend to develop between the age of one and four, include speech and developmental delays, sleep disturbances, and recurrent ear, nose and throat infections.”
CORROBORATED
The Mirror explicitly lists these symptoms and the age range (one to four), and Osmosis corroborates the symptoms and a similar age range (two to six).
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web search NEUTRAL — Sanfilippo syndrome, also known as mucopolysaccharidosis type III (MPS III), is a rare lifelong genetic disease that mainly affects the brain and spinal cord.
https://en.wikipedia.org/wiki/Sanfilippo_syndrome
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web search NEUTRAL — Signs and symptoms of Sanfilippo syndrome typically appear after the first year of life, usually between the ages of two and six.The clinical presentation can vary, including childhood dementia with d…
https://www.osmosis.org/answers/sanfilippo-syndrome
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web search NEUTRAL — Meanwhile physical symptoms, which tend to develop between the age of one and four, include speech and developmental delays, sleep disturbances, and recurrent ear, nose and throat infections.
https://www.mirror.co.uk/news/uk-news/boy-8-handed-horror-ch…
info
“Cody was diagnosed with type A, the most severe, with a life expectancy of mid-to-late teenage years.”
SINGLE SOURCE
While Metro News confirms the diagnosis of Sanfilippo syndrome, the specific detail about 'Type A' and the specific life expectancy for Cody is not corroborated by the other provided evidence snippets.
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web search NEUTRAL — Sanfilippo syndrome, also known as mucopolysaccharidosis type III, is a rare lifelong genetic disease that mainly affects the brain and spinal cord. It is caused by a problem with how the body breaks …
https://en.wikipedia.org/wiki/Sanfilippo_syndrome
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web search NEUTRAL — Cody was diagnosed with Sanfilippo syndrome, at only three-years-old (Picture: Jam Press/@codys_fight).The little boy was diagnosed with autism in 2020, aged two, before a diagnosis of Sanfilippo foll…
https://metro.co.uk/2026/05/19/watching-boy-8-fade-away-ever…
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web search NEUTRAL — Sanfilippo Syndrome late diagnosis, signs of Sanfilippo Syndrome, pediatric care for rare diseases, childhood dementia symptoms, caregiver support for disabled adults.
https://www.tiktok.com/discover/sanfilippo-syndrome-late-dia…
verified
“Cody’s body is missing an enzyme, which means his body has a lot of waste it can’t process, and this builds up on his spinal cord and brain.”
VERIFIED
Wikipedia, The Times of India, and a medical source all confirm that Sanfilippo syndrome involves a missing enzyme leading to the accumulation of waste in the brain and spinal cord.
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web search NEUTRAL — Sanfilippo syndrome, also known as mucopolysaccharidosis type III, is a rare lifelong genetic disease that mainly affects the brain and spinal cord.
https://en.wikipedia.org/wiki/Sanfilippo_syndrome
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web search NEUTRAL — Between the ages of five and ten, the accumulation of cellular waste in the brain leads to extreme hyperactivity, sleep disturbances, and a loss of previously acquired skills, such as language or toil…
https://timesofindia.indiatimes.com/health/illinois-siblings…
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web search NEUTRAL — Sanfilippo syndrome is a genetic disorder that affects your child’s metabolism and brain development. A person with this condition lacks a key enzyme that breaks down a type of waste produced by the b…
https://www.webmd.com/children/what-is-sanfilippo-syndrome
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“Since his diagnosis in July 2021, Cody has continued to decline, including his mobility, meaning he is often reliant on a wheelchair, and he can no longer swallow solid foods.”
INSUFFICIENT EVIDENCE
No evidence was provided for this claim in the search results.
help
“suffering epilepsy, which is common for children with Sanfilippo syndrome.”
INSUFFICIENT EVIDENCE
No evidence was provided for this claim in the search results.
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“While there is no known cure”
PENDING
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“They are waiting for the FDA to approve UX111, a gene therapy”
PENDING
info Disclaimer: This analysis is generated by AI and should be used as a starting point for critical thinking, not as definitive truth. Claims are verified against publicly available sources. Always consult the original article and additional sources for complete context.